GUIDANCE TO BEST CARE: DEVELOPING A PATHWAY TO EARLY PALLIATIVE CARE FOR PEOPLE WITH PANCREATIC CANCER IN AUSTRALIA

​​Background

Pancreatic cancer is a highly aggressive disease with a low survival rate. Patients often experience late symptom onset, high pain burden, and limited treatment options. The management of pancreatic cancer requires a holistic approach that addresses both physical and emotional needs. The development of a clear referral pathway for early palliative care is crucial to improve the quality of life for individuals with pancreatic cancer and their families.

Aim

To develop an evidence-based and community-informed pathway, with associated clinical guidance and implementation plans, for early access to palliative care for people with pancreatic cancer.

Method

The pathway development involved a longitudinal iterative approach. Key steps included:

Literature Reviews: Comprehensive literature reviews were conducted to identify existing evidence and best practices in early palliative care for pancreatic cancer.

Stakeholder Consultation: Extensive consultation was undertaken with a diverse range of stakeholders, including clinicians, consumers, peak body organizations, culturally and linguistically diverse groups, and Aboriginal and Torres Strait Islander communities.

Deliberative Dialogue: A deliberative dialogue approach was adopted to review the collected evidence and incorporate the insights and experiences of stakeholders. This facilitated the development of a pathway that is both evidence-based and responsive to the needs of patients and their families.